Followers

Friday, September 25, 2015

Thank you God for U Turns


Today while I was out running errands, I saw an elderly woman speaking with the cashier while I was shopping. She was lost and had stopped at the store for directions.


She was looking for a nursing home where her friend was and only had small pieces of information: Cleveland Road, Heratige Square,on a corner  but she had no name, no number and no address for the business    In the process of explaining this to the blank stare of the cashier, I watched as tears started to form in her eyes. She was on the verge of giving up. She was going to announce defeat.
Oh boy- haven't we all been there before? 
I approached her and acknowledged I had been listening to her problem. I offered to have her follow me to the unknown place that I was pretty sure I knew the location of. I told her that although I'm not certain of where she needs to be I will drive there while she follows me and in her car. In her complete desperation she agreed. She trusted in me, someone she had never met, to guide her to a place she needed to be. She was willing to follow me, having faith I would get her to her destination. She was desperate, alone and needed someone to guide her. 

As I traveled down State Road 23 at a slow crawl, making sure her minivan was always in my site, I learned some of my own lessons on being lost and following directions. About trusting and faith. About showing faith and not just quoting verses.  Words only work sometimes when giving directions. People sometimes need someone to lead them as they follow behind-closely watching the person in front of them. 

It was during this very slow crawl down State Road 23 with this thought that I had a moment of shame and then conviction and then sadness.
I have not been a very good guide when it comes to matters of my faith. 

I have been given very good written directions (my Bible) but lately, I've been driving my car recklessly while others have been following behind. 
I have been doing a lot of quoting from the Bible and discussing the Bible and sharing music that has a biblical message. I love nothing more than discussing and talking about my faith. But, a lot of times, more times than I would like to admit, I forgot that it's important to SHOW people my faith IN MY ACTIONS. 
Directions are not only about getting us from point A to point B but good directions are providing a trustworthy , safe and reliable route. I have not been doing this. 
The road I often show on social media is one filled with frustrating bumps, and annoyances. Complaining. Grumbling. Fear. Dismay. While outwardly, I continue on my road my inward path is cluttered with junk.
As a Christian that is neither a safe nor a reliable route to take- it's called being "double-minded" By being a careless driver of my faith I have the potential to steer others off course and to ultimately become lost myself. 
I hear the Word of God.
I believe the Word of God. 
I say Amen
I even quote the Word of God. 
But later, I begin to survey my problems. 
I begin to speculate how to deal with them. 
I become bitter and I have forgotten Truth. It happens quickly and a lot. 
James 1:8- he is a double-minded man, unstable in all his ways. 
Matthew Henry's commentary on James 1:8 says:
 "A mind that has single and prevailing regard to its spiritual and eternal interest, and that keeps steady in its purposes for God, will grow wise by afflictions, will continue fervent in devotion, and rise above trials and oppositions. When our faith and spirits rise and fall with second causes, there will be unsteadiness in our words and actions. This may not always expose men to contempt in the world, but such ways cannot please God. No condition of life is such as to hinder rejoicing in God."

When we are lost we are uncomfortable.  We let panic set in and we react. That reaction might  be a tear in the corner of an eye but it could also be a harsh word,  a hidden message, a slight jab here or there, or an exclusion. 
When we are lost we need the courage AND THE FAITH to seek someone who can show us the way with reliable directions. While we travel on our difficult roads we also need to be able to look in the rear view mirror at our own reflection and make sure  that we are on the correct road and people following US won't become lost and to be certain who you are following is leading you in the best direction. If you are not on the correct road, you need to stop. Do a u turn and remember who you should be following first. JESUS. Whose direction you should be seeking. 
He has the only reliable map (the Bible) 
By following His direction first and always your destination will be the most glorious place. Heaven. 

So  friends , today as an elderly stranger followed behind me, I learned that what I need to do is a U-turn I need to back up. I need to throw myself in reverse. I need to get off the road of opposition and greif and the need for worldly approval and get back on a road where I can faithfully follow Jesus. 
So much is happening in my life right now both good and bad. I'm seeing in my words on Facebook and my conversations with others that I'm not SHOWING my faith in action. 
My road has become littered with arguing, complaining and strife. So as I make this change of direction I want you all to know, I still want to connect with you just not on social media. It's not a good place for me because my brain races ahead before my heart can stop it. I have lost my direction I need to stop so I can get back on the road that Jesus is leading me on. I'm not ditching facebook but I'm just not going to like and comment while on- I still do like everything about you all.  I hope you all know that. I am just better off telling you in person so you know and can see my intentions. 

But right now I need to focus less on other people's driving and more on my own. 

God sure knew what he was doing today. When he sent the elderly stranger with a simple predicament and used her so profoundly to change a complicated, messy road such as mine. 
Time to reverse and have Jesus show me the road I was meant to travel on. 
I am so happy God allows U-Turns! 

Thursday, August 20, 2015

A NEW BEGINNING


The end of summer vacation for me always signals new beginnings -a time to start fresh. Not only do I get fresh haircuts and buy new school supplies for my kids, I am provided new and endless opportunities: to volunteer, to start a new job, to begin a new exercise routine and to set new goals. 

For me, it seems that the weeks leading up to a new school year are when I am  best at decision making, delegation and scheduling. It is a time when I am extremely productive and brutally honest when choosing what makes it on my calendar and into my daily schedule. I find if I don't keep these things in check at this time the rest of the school year will not flow smoothly and new beginnings make way to winter chaos.

My personality is one in which decision making is usually "go BIG or go home" halfway doesn't work and full commitment is necessary. 
It seems that when I am knee-deep in the chaos of new beginnings I make the most drastic changes.
This year was no different.
All summer I have been on a drug to treat my Cushing's disease. It was a last (very last) ditch effort for treatment and my only hope medically to avoid adrenal surgery. 
 And...one that I was not comfortable taking, but took anyway -
off label 
black labeled 
three pills a day 
all summer long. 
It DID seem to be working. I shed a few pounds, was sleeping great and the effects of the disease were diminishing a little each day.
BUT
I learned that the quality of my life is important too. I learned that labels lie. And that the "may cause stomach discomfort" on this medicine should have actually read: "you will not leave the restroom of your home. All social activities will cease and you will consume massive amounts of TUMS just to just get yourself from the fetal position on the couch out the door to civilization.This will be for the entire duration you take this medicine."

With this summer medicine memory still fresh in my mind and because I am best at new beginnings in the midst of chaos, this year at back to school time I made a BIG decision. 

I have decided that I will no longer treat my Cushing's disease. Not with this medicine. Not with surgery. I'm going to stop any/all medical interventions at this time.  I will not even consider another medical intervention until next summer and possibly not even then. I'm done. Exhausted. Finished. 


Since 2007 I've had I have been to two major medical centers, have seen countless doctors from all over the world. I've had two brain surgeries, two tumors removed, the right side of my pituitary gone, I have taken drugs that were experimental, spent thousands of dollars and countless time and energy trying to beat this disease and now it is time to stop. 
Not to give up hope -but to stop seeking medical interventions.
It is time that I rest. Rest my body. Rest my mind. And most importantly rest in God's care. 
I will rest in the fact that God will protect me and keep me safe. God will provide wisdom to understand the struggle. I must STOP and REST long enough to not only ask the questions but to listen and to wait for His responses. 
Chronic health problems cause stress, fear, discouragement, loneliness and depression. The simplest decisions are overwhelming and they consume you. I'm choosing to let go of all of that as Jesus calls me back from that fear to my faith. It is because of God's complete protection I feel secure in making this decision. God does not see my struggles like I do. God does not see Cushing's disease like I do.
I see stress. He sees opportunity. I see crisis. He sees potential for growth. So as I began this new school year I'm choosing to turn from myself to the strength of God and God, by his grace will keep me from fear, sadness and hopelessness. 
If there is one thing struggles can reveal it is the strength of faith. Every struggle that has come into my life has been a test of my faith. I've held into this verse from 
James 1:3  "for you know that the testing of your faith produces steadfastness." But now I need to read further because 
Verse 5 continues on to say:
" if any of you lacks wisdom let him ask God, who gives generously to all without reproach, and it will be given to him. But let him ask in faith, with no doubting, for the one who doubts is like a wave of the sea that is driven and tossed by the wind."
When I am fearful and when I am hopeless I am doubting.
So in my new beginning I will stop.
 I will seek wisdom.
 I will rest in His promises.
I will not focus on my weaknesses but will be driven to prayer and to leaning on God's strength. 
New beginnings are not always easy. In fact, most of the time they are hard. Showing my strength and faithfulness to God, no matter what I face, is what I'm called to do.  It will not be easy, but it will be worth it. I know I must take this time to see the resolution available to me by investing my time, clearing my schedule and spending my days in faithful and persistent prayer to God. Relying solely on his grace and promises.
Not invasive surgeries. 
Not black label drugs. 
Not worry.
I have to stop fighting it and fearing it and know that God will use it for good. He is in control. 
So Instead of continually pleading for my suffering to end I will learn this year to accept it and pray about it and seek direction in the midst of it.  To see the good in it and enjoy my life in spite if it. 
To stand no matter how hard it becomes. 
To know  it will be worth it.
I am cared for and protected, and, because of this complete protection from God,  in this new beginning I feel secure. 
I feel comfort. 
I feel peace.
 I can rejoice. 
It won't be easy. 
He doesn't promise ease. 
But I will be protected and I will be at peace knowing it was in Him I placed my trust. 
Please pray for me as I begin. 
Here's to a wonderful, restful year!!


Thursday, July 16, 2015

Pause



This summer has been so busy for me. It seems like I can hardly catch my breath at times. I drop off, I pick up, make calls, leave messages, reply to messages, schedule, maintain, and try my best to keep up with this crazy summer "break"
But then-a PAUSE comes.

It can can be just for a moment in a whispered prayer or a exhale or it can be lengthy-causing me to reroute my path and/or reframe my thoughts before continuing forward. 
It is during these pauses that I learn patience, am given strength- and am  finally still enough to hear God's voice.

When I pause, I learn to once again fully rely on God. It is in life's pauses that I have intimacy with God. Where I am still enough to hear his voice and His direction.

There is nothing else in my life that causes the greatest pause than my Cushing's disease. It's the one thing that can not only cause me to pause but it can actually stop my life like a crazy train screeching to a halt. I can avoid it and  ignore it, but sooner or later I will have no other choice- I will be forced into a pause.
Tuesday was the pause. The day had come that I was to stop ignoring this disease.  I left for Chicago in the morning filled with hope that this disease had simply disappeared from my body and I returned home clinging to the answers I was given, but feeling very hopeless and defeated. 

On the drive home I kept thinking about this verse. 
Psalm 34:18(ESV)
The Lord is near to the brokenhearted and saves the crushed in spirit 
Verse 19 goes on to say, "many are the afflictions of the righteous, but the Lord delivers him out of them all."

My spirit was crushed. 
I HAVE again avoided adrenal surgery. That is great news-Praise God! BUT -the topic of repeat pituitary surgery came up (which would be extremely risky). After laughing at my doctor and reminding him that surgery through my nose  will never happen again- EVER- He gave me another prescription to try. Another drug to be used off label (not it's intended purpose) and in high doses. One month. That's it. They will know. After that month, if there are no changes I will pause again. 
During this particular pause I cannot afford to ask "why me?" I cannot afford to be frustrated and I certainly will not challenge God by asking him why. While I do not understand all the reasons why I'm still battling this disease and it's uncertainty, I do understand -clearly (but need to remind myself often) that being a follower of Christ and being surrendered to Him does not guarantee my good health. I also understand that the prayers I have prayed for the restoration of my health are being answered in His way and in His timing and that just because I am not cured right now doesn't mean it's hopeless.  Prayer is what sustains me in my struggle. God has always given me what I needed to get through every moment. He will continue doing just that. 
He is the Overcomer 
John 16:33 says , "I have said these things to you that in me you may have peace ; in the world you will have tribulation, but take heart I have overcome the world."
I know that I can rest in His grace and trust in His love. I can always depend on God to cover my heart with His peace knowing that my peace should not depend on test results or scans or even how healthy I am, but  my peace comes because He covers me with his love. 
John 14:27 
Peace I leave with you , my peace I give to you ; not as the world gives do I give you. let not your hearts be troubled neither let them be afraid. 

Since I was diagnosed in 2008 God has done incredible things in my life. He has helped me to see the blessings as well as the lessons this hardship contains. It has brought both my strengths and my weaknesses to the surface.
So my prayer today, as I begin yet another experimental drug, is that He helps me see the purpose behind His plan for me and that I draw closer to Him. Knowing in my weakness He is strong. 
I pray that he covers me during this pause 
and every pause after. 

Isaiah 41:10 
fear not for I am your God.  I will strengthen you.I will help you and I will hold you with my righteous right hand.

Romans 8:28 
and we know that for those who love God all things work together for good for those who are called according to his purpose.

Sunday, January 11, 2015

E learning

Friday we were introduced to the world of e-learning. Of course as everyone started their e-learning, they also started posting their thoughts on social media. As the day progressed, I noticed there were some pretty distinct groups that emerged:

The "I don't want to go to school in July" group. This group holds those visions of  carefree summer days in a  tight grip and publically expresses how grateful they are for those dear people that sit in the administration building, saving them and their children from going one day past the already specified date on the calendar.  I do not fit in this group. I would much rather have my children go to school  in the warmth and sunshine (even If that means the first week of June) than to be trapped with them in -30 weather in a house that shrinks with each passing day all the while trying to supervise THEIR LEARNING.

This group will be in for a rude awakening if/when our  district decides to adopt a balanced calendar-( reducing the long summer break with more frequent breaks balancing the frequency of  in session days with days on break) because if/when the district decides to do that, they will remember all those who grasped those blizzard folders so tightly as to not lose one precious moment of summer. We will then be getting rainy day folders, wind gust folders, bright sunshine folders and wet streets folders because the administration knows how much you hold tightly to scheduled breaks. 

The next category is the "I don't really mind e-learning because my life is perfect, my kids are perfect and well-everything is perfect" 
I actually DO know people who are genuinely this way- who never , ever offer their opinion on Facebook OR in real life. Who don't question policies and generally go with the flow. This group did not post pictures with the intention of saying I'm perfect, but they did so to document the moment with their kids.  This is the category of parents that will be cherry picked to evaluate the program. This is also the group whose pictures you see on our district's website. 

Somewhat similar, but yet very different, the 3rd group emerged.  It was the most complex. It was the "I hate e learning so much I could spit but I'm going to continue pretending life is perfect" group.  
The " I will judge everyone else who posts about their struggles." Is a sub-group.
While posting how this has been a beautiful, family growing experience they simultaneously sent private messages to their friends and told them how much they hate school, hate homework, hate their dog, their life,
their shoes, etc.
We all know that this group does not live lives of roses and sunshine but we  are entertained by their determination to make us think they do. This group is the  I hate homework in real life and the I'm so thankful for my child's teachers and this gift and opportunity to work with my children at home Facebook life. It's called social media double-life syndrome- 

Which brings me to the last group I encountered and the one to which I am a proud member of. It is the "This is real life" group. The transparent , the raw, the real. 
These are the people that you can count on to post about everyday struggles- even the ones people normally tiptoe around. These are the people who posted pictures of the dog sitting on the e learning, a nerf dart stuck to the work, or in some instances- a sleeping mom. This group didn't post  because they like to complain all of the time. They posted real life, as they do every other day- they shared openly and honestly about  the struggles they faced.
Life is hard, e learning included. Sometimes our online community is where we find support.  Being authentic does not mean you are not grateful. It does not mean you like to complain. It means you are honest. I am glad to be able to share my frustrations without sugar coating my realities or picking out the perfect parts. 

And so-
 WITH ALL OF THAT SAID 
Here is the way I see e learning ( my very own personal opinion for which I do not need to be burned at the stake for.)

Regardless of which category you fall into there are some simple truths behind e-learning -decisions and actions that don't involve social media or even the parents. These actions are not necessarily looking out for our kids best interest but the interest of test scores and money.

When we choose to enroll our children in public education we are expecting certain things -safety, quality of education  and equal opportunities for all.  We do not expect or require our schools to have perfect i step scores, blue ribbons or even to mold our children into great test takers. 
So it is perplexing to me why we are allowing quality and equal opportunity to be forgotten for the sake of a calendar. 
When you move guided learning and certified teachers out the doors of your district's buildings and replace them with parents you will lose equality and you will sacrifice quality instruction. 

Our district is making a clear choice to do this -not in a way in which we support our child's learning but in a way that makes us their school teacher for the day.  We do not get paid. We do not get reimbursed for time off of our regular jobs. We get more work and unhappy kids. And a lot of people are doing it without questioning it. I can't figure out why. 
There is truly nothing equal about e-learning. Not.one.thing. We all live very different lives. Our homes and situations are different.  There are so many different learning environments across our district : we have parents working outside the home, some working  from the  home, computer access and no computer access , hunger ,stress ,disabilities, single parents, Phd's, GED's, only children- multiple kids. We have students that are watching Tom and Jerry alone on the couch while trying to complete their math before mom and dad get home from work and we have the children whose parents wake them with a cute little song , a special breakfast, and one or both hold degrees in education. They sit with them -cheering them on all day. 
This is not equal education. 

When you combine this with the real reasons our district has bamboozled us into adopting e learning (not the one where you think the administration is distraught over the fact that your child won't be able to frolic in the grass soon enough),  but the real reasons: 
TEST SCORES and 
MONEY
One can't help but to wonder how did this happen? 

The following are quotes from leaders of schools in Indiana:

*East Allen community school superintendent Ken Folks . "When we add days at the end of the year, that's past the time our students have taken their assessments by which we are measured." He also stated that "to be able to capture instructional time prior to those assessments is key to us"- 

"The main thing that we noticed last year is that those days we had to miss due to the weather were really important to us," said Bobby Thompson, principal at Triton Middle School, the first school in the district to try the program. "Those were the crucial time to prepare students for standardized assessments.".  

Last year Dr. Thacker had a message for skeptics of e learning.  In a  interview with WSBT he said, "Our vision of excellence. This is truly an opportunity for innovation we're going to take advantage of this opportunity and do something that will put our students on the leading edge of technology for learning. "
Last time I checked, opening a PDF file and printing off a document was neither innovative or on the leading edge. 

As a parent- whether we love it or hate it, we should be raising some serious questions when it comes to e-learning starting with the question about how to avoid it all together by asking Why. Why, when we live  in Northern Indiana, do we only have one calamity day built in our district's calendar? Districts five miles away have five. How can a district in Portland, Oregon have more calamity days built in than we do? 
Has our district looked at studies that have proven it is more or less stressful to take learning home? What research have they done other than test scores and money saving charts that says this is the BEST option for the STUDENTS-not what benefits the district. 

As a teacher I would be asking what will happen long-term if this e-learning should happen more frequently? In Muskegon , Michigan teachers found out what happens- they will not get paid for snow days. 
As a former teacher, I knew my degree mattered. It confirmed I had trained and studied. It was important. 
Now, our district is sending the message to its teachers that anyone  can do it -you just need a printer and some snow. I would be concerned as a paid professional, a valuable asset in the children's lives I teach that I would be able to retain my credibility. When the district is encouraging at home learning they are replacing teachers with degrees. Doing this even for a short time sends a bad message about how much our district values teacher /student interaction.  It sends the message that these teachers are easily replaced. 
 It's just snow days now but Dr. Thacker told WSBT in an interview that"  a recent report estimates 50% of high school classes will be offered online by 2019". That is definitely not a statement that would give me job security. 

As for our district's students and the reason why we are having this discussion- my concern would be for the slow and steady loss of quality instructional time and lack of consistency that being at home and e learning would show. This concern is not to be grouped with those who choose to teach their children at home full time. 
Families that choose to homeschool have chosen to do it because it is the best fit for their family.  It works because it is productive and consistent- short bursts of at home e learning can not and should not be compared to the proven benefits of homeschooling. 

Everyone is entitled to have an opinion about e learning.  This us just mine but If you feel inclined, research it, talk about it, complain about it- cry, kick and scream- but know- e learning exists because no one has chosen to speak honestly and openly about it and the people who decided it was the best option- never really gave us any other options.  

Saturday, January 3, 2015

Hope



Yesterday I prayed over this bottle of pills just like I had done 30 days ago before I took the first dose. This bottle contains the drug Keteconozole. 
Using it to treat Cushing's disease is considered off-label, unconventional, experimental, and for me, it signals a new hope for relief from a disease I've been battling for eight years.
This bottle also serves as a reminder of WHO is my hope.
After 30 days with no change in symptoms but plenty of side effects, after days on the couch and nights with little sleep, I had allowed my mind to wander briefly to that place where defeat exists, where losing becomes a possibility and winning doesn't happen-the place where I am almost out of options-almost out of interventions, a place that I depend upon doctors and treatment plans and weird pills-a place that allowed me to look at 
ONE bottle of pills 
ONE doctor 
ONE more try 
ONE more dose 
A place where I forgot to look to 
THE ONE -
THE ONE WHO HEALS.
THE ONE WHO NEVER LEAVES.
THE ONE WHO ALREADY KNOWS.
THE ONE WHO IS NEVER OUT OF OPTIONS.
During the eight years I have battled this disease I have been swinging like a giant pendulum between 
sickness and health 
remission and failure 
weak and strong 
despair and hope.
This new year- I am choosing to focus on HOPE. 


Hope is a word that I will cling to as I start 2015-not in a blow out a candle or toss a penny in the fountain kind of way hope but biblical hope.
I don't just WISH to be healthy. I have never in eight years just crossed my fingers and waited-wishing to be healthy. The hope I cling to is the hope that I find in my Bible. 

 Now faith is the assurance of things hoped for, the conviction of things not seen. Hebrews 11:1 (ESV)

The hope in the Bible is seeing the good or expecting good even when it seems I am without options.
It is confident.
It is assured.
It is certain.
HOPE is a wonderful thing even if I hold just a tiny sliver of it or a promise of it. Knowing God will act and trusting that he will is hope. 
The very heart of the gospel message is HOPE. 

In him we have obtained an inheritance having been predestined according to the purpose of him who works all things according to the counsel of His will.
Ephesians 1:11 (ESV)

God is the only one who can offer me hope in the middle of this pain. It's not just God's intention but it's His heart's desire. 
Since the first symptom and ultimate surgery to every follow up, additional surgery, test, and MRI, I know none of this pain is wasted -NONE. 
I know God is glorified through the healthy and the sick and he is faithful. The Bible assures me 

My times are in Your hands.
Psalm 31:15

God is in complete control.
When my life is spinning ,He holds me tighter 
When I am facedown, He lifts me up.
My times are not in the control of my disease. My times are in His control and because of that, I can continue to hope and to be assured that no matter what happens ,it will be used for good. 
GOOD doesn't necessarily mean freedom from this illness. 
Maybe GOOD is bringing hope or strength to someone else facing hardship 
 Maybe GOOD is how this disease has made me completely transparent about my struggles, possibly opening the door for others to feel confident enough to share their struggles or maybe the GOOD is simply the journey. 
Learning to trust His promises , learning to praise Him in every circumstance and teaching myself to search the scriptures for assurance instead of googling possible results. 
Making time to be with Him by searching has already allowed me to know:

Because of hope I am secure.

And you would be secure because there is hope Job 11:18 (ESV)

Because of hope I am confident.

Lead me in your truth and teach me for you are the God of my salvation on you I will wait all the day. Psalm 25:5 (ESV)

Because of hope I will wait.

Wait on the Lord ;be of good courage and He shall strengthen your heart. wait, I say, on the Lord!  Psalm 27:14

Because of hope my strength is renewed.

But those who wait on the Lord shall renew their strength they shall mount up with wings like eagles they shall run and not be weary they shall walk and not faint Isaiah 40:31

I will wait.
I will strengthen my faith. 
I will hope. 

May 2015 bring you the assurance of HOPE no matter what you are facing. 

🎶"I find my strength. I find my hope. I find my help, IN CHRIST ALONE. "🎶

This song is a great reminder who to cling to during difficult times!